The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
| Author | : | |
| Rating | : | 4.13 (514 Votes) |
| Asin | : | 0312671830 |
| Format Type | : | paperback |
| Number of Pages | : | 304 Pages |
| Publish Date | : | 2014-11-16 |
| Language | : | English |
DESCRIPTION:
Jacqui Murray said On a par with Born on a Blue Day. Ian Brown's memoir, The Boy in the Moon (St. Martin's Press "On a par with Born on a Blue Day" according to Jacqui Murray. Ian Brown's memoir, The Boy in the Moon (St. Martin's Press 2011), is an eye-opening trip into parenting a special needs child. In this case, Ian Brown and his wife have a severely disabled child with an orphan disease (one which is not studied or researched much), making both diagnosing and dealing with the disease difficult. This particular disease, CFC (cardiofaciocutaneous disease) is extremely rare, gets worse as the child matures and can't be cured. The story deals primarily with the Dad's struggle to come to terms with his son's life as a CFC sufferer.Ian Brown didn'. 011), is an eye-opening trip into parenting a special needs child. In this case, Ian Brown and his wife have a severely disabled child with an orphan disease (one which is not studied or researched much), making both diagnosing and dealing with the disease difficult. This particular disease, CFC (cardiofaciocutaneous disease) is extremely rare, gets worse as the child matures and can't be cured. The story deals primarily with the Dad's struggle to come to terms with his son's life as a CFC sufferer.Ian Brown didn'. Will long stay with me Robin Wolaner I met Ian Brown decades ago, although we are not in touch, which is why I noticed this book when it was published in Canada. I didn't read it, though, until after the rave review in the NY TImes, and I am so glad I did.I used to think of parents with disabled children as heroic -- used to wonder if I could be as heroic as they if I were not blessed with healthy children. Having read The Boy in the Moon, I see their lives differently. The children are the heroes, and while I would not call a parent blessed to have their life so rearranged, I understand the use of that term n. A no mush story of fatherhood M. Palasik Wow. This book is sad, no question about that. Do not read this book thinking you will find a lovey, mushy, happy ending because this is real life. But, wowthis dad is real.This is the story of Ian Brown. His son, Walker (it's nice to have a father's perspective for once), has cardiofaciocutaneous (CFC) syndrome which is a very rare genetic mutation. It causes the person to have unusual facial features, and usually results in the inability to speak as well as the the compulsion to hit oneself most of the time. Devastating.However, I ranked this book with 5 stars. Why do tha
As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. A New York Times Top 10 Book of 2011“An intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raisesIt is a beautiful book, heartfelt and profound, warm and wise.” &nb
"A father’s candid, heart-wrenching account of raising, loving and trying to connect with and gain insight into his severely disabled sonMuch more than a moving journal of life with a disabled child; it is about Brown’s quest to understand his son and his son’s conditionAn absorbing, revealing work of startling frankness."--Kirkus Reviews